Our mission is to support and educate those affected by lupus and find a cure.

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Come celebrate the 16th Annual Walk-Along for Lupus!

Bellmore, NY – The Lupus Alliance of America Long Island/Queens Affiliate will be celebrating the 16th Annual Walk-Along for Lupus on Sunday, October 18th 2009, in Eisenhower Park, Field #6.

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The Lupus Alliance of America LI/Q Affiliate is proud to announce the start of a National Lupus Awareness Campaign in partnership with the U.S. Department of Health & Human Services and the Ad Council.

Despite statistics that show Lupus is a serious national health problem, affecting as many as one out of every 200 Americans, Eighty percent of young women in the United States say they have little or no knowledge of lupus, according to a national online survey released this week by the Ad Council.

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The Lupus Alliance of America LIQ Affiliate has several Awareness and Education Forums set for Lupus Awareness Month in May.

New York State Senator Shirley L. Huntley, with Senate Majority leader Malcolm A. Smith along with The Jamaica Neighborhood Center`s Southeast Queens Lupus Connection, will be presenting a Lupus Awareness and Education Forum on Thursday, May 8th from 10:00am-1:00pm at the Jamaica Neighborhood Center at 161-06 89th Avenue in Jamaica N.Y.

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The Lupus Alliance of America LI/Q Affiliate will use the power of Social Media to help recognize Lupus Awareness month in May.

In the 1950`s televisions had tubes inside them, antennas on top of them, and received 13 channels. Today televisions have flat screens, are digital and receive more than 400 channels; big difference. In the 1950`s cars were metal, had carburetors and manual steering. Today, cars are fiberglass, have fuel injection and are controlled by computers; really big difference. In the 1950`s lupus was treated with a steroid medication that caused bone loss, stunted growth, delayed puberty, and unsightly stretch marks, named Prednisone. Today lupus is treated with a steroid medication that causes bone loss, stunted growth, delayed puberty and unsightly stretch marks, named Prednisone….see the difference? Neither do we.

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GOVERNOR PATTERSON PROCLAIMS MAY 2009 LUPUS AWARENESS MONTH IN NEW YORK

Albany, NY, May 5, 2009) -- May has been declared Lupus Awareness Month in New York State by Governor David A. Paterson.

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National Womens Health Week

Bellmore, NY – Join the Lupus Alliance, Long Island/Queens Affiliate in celebrating National Women’s Health Week, May 10th to the 16th, 2009. Help the Lupus Alliance reach out to all women in the community and let them know, “It’s Your Time,” time to be more informed about their health and learn about lupus today!

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The Lupus Alliance of America LI/Q Affiliate is proud to announce the start of a National Lupus Awareness Campaign in partnership with the U.S. Department of Health & Human Services and the Ad Council.

Despite statistics that show Lupus is a serious national health problem, affecting as many as one out of every 200 Americans, Eighty percent of young women in the United States say they have little or no knowledge of lupus, according to a national online survey released this week by the Ad Council. In an effort to raise awareness of lupus the U.S. Department of Health and Human Services' Office on Women's Health is joining the Ad Council to launch a national multimedia public service advertising campaign to address the disease.

Continue reading "The Lupus Alliance of America LI/Q Affiliate is proud to announce the start of a National Lupus Awareness Campaign in partnership with the U.S. Department of Health & Human Services and the Ad Council." »


The Lupus Alliance of America LI/Q Affiliate sends patient advocates to Washington D.C. to urge Congress to increase the NIH budget, as well as to continue to support lupus research and education

Washington D.C. – On March 5th, Board Members, staff and patient advocates from The Lupus Alliance of America LI/Q Affiliate joined other members of the LRI National Coalition from all over the country for Lupus Advocacy Day in Washington D.C. Among these advocates were Long Island residents, Nancy Beder and JoAnn Quinn of Bellmore, Violet Regan of Westbury, Mary Geraghty of Northport, Bonnie and David Mamiye of Great Neck, J.C., Carole-Anne and Luke Bonner of West Babylon, and John Vander-Putten, Frank, Christine and Olivia Donato all of Massapequa Park.

Continue reading "The Lupus Alliance of America LI/Q Affiliate sends patient advocates to Washington D.C. to urge Congress to increase the NIH budget, as well as to continue to support lupus research and education" »


The Lupus Alliance of America LI/Q Affiliate, Long Island’s only Lupus agency reaches out to those that need their help.

Since 1955, The Lupus Alliance of America LI/Q Affiliate has been helping those with lupus live better lives while also funding and searching for a cure. As the only Lupus agency to ever be on and exclusively for Long Island, the Lupus Alliance provides several patient orientated programs to help ease the pain of living with this chronic life threatening illness.

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Lupus Gala Brunch

Lupus Gala Brunch Honoring local Volunteers and Supporters, scheduled for April 27, 2008.

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Save the Date. Lupus Gala Brunch scheduled for April 27th, 2008!

On Sunday, April 27th, 2008 from noon to 4pm at the Melville Marriott, the Lupus Alliance of America LI/Q Affiliate will be holding a Gala Brunch to raise funds and honor those who have helped the Alliance with their fight against lupus.

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Want to enjoy a night on the town in Manhattan while helping someone with lupus?

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For the first time in over 40 years, new medications are being designed and tested for lupus!

For the first time in over 40 years, new medications are being designed and tested for lupus, prompting The Lupus Alliance of LI/Q to urge everyone who has lupus to get involved and be part of the cure!

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NIAMS releases "The Future Directions of Lupus" report.

Due to the recent congressional lobbying by the Lupus Alliance of LI/Q, the National Institutes of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) has posted “The Future Directions of Lupus” on their website for public comment.

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Men`s Health Week

DURING NATIONAL MEN`S HEALTH WEEK, THE LUPUS ALLIANCE URGES ALL MEN TO TAKE THE LUPUS SELF-SCREENING TEST, ONE MINUTE OF YOUR TIME AND ELEVEN QUESTIONS THAT COULD SAVE YOUR LIFE.

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Living with Lupus: Connecting Today and Tomorrow, a one-day symposium on lupus hosted by The Lupus Alliance of America LI/Q Affiliate will be held July 15 at Hofstra.

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The Lupus Alliance announces a new College Scholarship to benefit those whose lives have been touched by lupus.

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THE LUPUS ALLIANCE OF AMERICA LI/Q AFFILIATE URGES THE PUBLIC TO LEARN MORE ABOUT LUPUS DURING NATIONAL WOMEN’S HEALTH WEEK FROM MAY 13-19.

Continue reading "THE LUPUS ALLIANCE OF AMERICA LI/Q AFFILIATE URGES THE PUBLIC TO LEARN MORE ABOUT LUPUS DURING NATIONAL WOMEN’S HEALTH WEEK FROM MAY 13-19." »


PR: THE LUPUS ALLIANCE CORRECTS DR. PHIL ON HIS COMMENTS ABOUT LUPUS, AND URGES EVERYONE WITH LUPUS TO SET THE RECORD STRAIGHT AND TELL THEIR STORY.

Continue reading "PR: THE LUPUS ALLIANCE CORRECTS DR. PHIL ON HIS COMMENTS ABOUT LUPUS, AND URGES EVERYONE WITH LUPUS TO SET THE RECORD STRAIGHT AND TELL THEIR STORY." »


PR Anna Nicole Smith and American Idol contestant Leslie Hunt

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PR: The Lupus Alliance of LI/Q would like to remind the public about their direct patient support services.

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PR: The Lupus Alliance of LI/Q announces their new Occasion Favors.

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PR LOOKING FOR UNIQUE HOLIDAY GIFTS THIS YEAR?

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PR Patient Advocates Visit Capitol Hill

Patient Advocates from the Lupus Alliance of America LI/Q Affiliate participate in National Lupus Awareness activities on Capitol Hill.

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PR Significant Others Support Group Meetings

If you love someone with lupus, The Lupus Alliance of America Long Island/Queens Affiliate would like to invite you to join their Significant Others Support Group Meetings.

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