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We are committed to providing
education, support and services to people with lupus, their families
and friends, the medical community and the general public.
2255 Centre Ave. ♦ Bellmore, NY 11710 ♦ Phone: 1-800-850-9000
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Please use the toolbar to the left to view pages by
category, or use the search box above. Our most recent
entries are below.
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The Lupus Alliance of America LI/Q Affiliate sends patient advocates to Washington D.C. to urge Congress to increase the NIH budget, as well as to continue to support lupus research and education
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Washington D.C. – On March 5th, Board Members, staff and patient advocates from The Lupus Alliance of America LI/Q Affiliate joined other members of the LRI National Coalition from all over the country for Lupus Advocacy Day in Washington D.C. Among these advocates were Long Island residents, Nancy Beder and JoAnn Quinn of Bellmore, Violet Regan of Westbury, Mary Geraghty of Northport, Bonnie and David Mamiye of Great Neck, J.C., Carole-Anne and Luke Bonner of West Babylon, and John Vander-Putten, Frank, Christine and Olivia Donato all of Massapequa Park.
Continue reading "The Lupus Alliance of America LI/Q Affiliate sends patient advocates to Washington D.C. to urge Congress to increase the NIH budget, as well as to continue to support lupus research and education" »
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The Lupus Alliance of America LI/Q Affiliate, Long Island’s only Lupus agency reaches out to those that need their help.
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Since 1955, The Lupus Alliance of America LI/Q Affiliate has been helping those with lupus live better lives while also funding and searching for a cure. As the only Lupus agency to ever be on and exclusively for Long Island, the Lupus Alliance provides several patient orientated programs to help ease the pain of living with this chronic life threatening illness.
Continue reading "The Lupus Alliance of America LI/Q Affiliate, Long Island’s only Lupus agency reaches out to those that need their help." »
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Lupus Gala Brunch
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Lupus Gala Brunch Honoring local Volunteers and Supporters, scheduled for April 27, 2008.
Continue reading "Lupus Gala Brunch" »
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Save the Date. Lupus Gala Brunch scheduled for April 27th, 2008!
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On Sunday, April 27th, 2008 from noon to 4pm at the Melville Marriott, the Lupus Alliance of America LI/Q Affiliate will be holding a Gala Brunch to raise funds and honor those who have helped the Alliance with their fight against lupus.
Continue reading "Save the Date. Lupus Gala Brunch scheduled for April 27th, 2008!" »
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Want to enjoy a night on the town in Manhattan while helping someone with lupus?
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THE LUPUS ALLIANCE OF LI/Q IS RAFFLING OFF A BEAUTIFUL HANDMADE DOLLHOUSE TO RAISE FUNDS FOR THEIR DIRECT PATIENT SUPPORT PROGRAMS.
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SUMMER FUNDRAISERS FROM THE ENTERTAINMENT BOOK TO DISCOUNTED BROADWAY SHOWS ARE HELPING THE LUPUS ALLIANCE OF LI/Q REACH OUT TO MORE PEOPLE THAN EVER BEFORE!
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For the first time in over 40 years, new medications are being designed and tested for lupus!
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For the first time in over 40 years, new medications are being designed and tested for lupus, prompting The Lupus Alliance of LI/Q to urge everyone who has lupus to get involved and be part of the cure!
Continue reading "For the first time in over 40 years, new medications are being designed and tested for lupus!" »
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NIAMS releases "The Future Directions of Lupus" report.
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Due to the recent congressional lobbying by the Lupus Alliance of LI/Q, the National Institutes of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) has posted “The Future Directions of Lupus” on their website for public comment.
Continue reading "NIAMS releases "The Future Directions of Lupus" report." »
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Annual Lupus Raffle
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The Lupus Alliance begins its annual raffle with new great prizes in the hopes of raising more money for community outreach projects!
Continue reading "Annual Lupus Raffle" »
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Men`s Health Week
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DURING NATIONAL MEN`S HEALTH WEEK, THE LUPUS ALLIANCE URGES ALL MEN TO TAKE THE LUPUS SELF-SCREENING TEST, ONE MINUTE OF YOUR TIME AND ELEVEN QUESTIONS THAT COULD SAVE YOUR LIFE.
Continue reading "Men`s Health Week" »
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Living with Lupus: Connecting Today and Tomorrow, a one-day symposium on lupus hosted by The Lupus Alliance of America LI/Q Affiliate will be held July 15 at Hofstra.
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The Lupus Alliance announces a new College Scholarship to benefit those whose lives have been touched by lupus.
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THE LUPUS ALLIANCE OF AMERICA LI/Q AFFILIATE URGES THE PUBLIC TO LEARN MORE ABOUT LUPUS DURING NATIONAL WOMEN’S HEALTH WEEK FROM MAY 13-19.
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PR: THE LUPUS ALLIANCE CORRECTS DR. PHIL ON HIS COMMENTS ABOUT LUPUS, AND URGES EVERYONE WITH LUPUS TO SET THE RECORD STRAIGHT AND TELL THEIR STORY.
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PR Anna Nicole Smith and American Idol contestant Leslie Hunt
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PR: The Lupus Alliance of LI/Q would like to remind the public about their direct patient support services.
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PR: The Lupus Alliance of LI/Q announces their new Occasion Favors.
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The Lupus Alliance of LI/Q is pleased to announce a new service in Spanish for people with lupus
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PR LOOKING FOR UNIQUE HOLIDAY GIFTS THIS YEAR?
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PR UV Safety Month
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DURING UV SAFETY MONTH, THE LUPUS ALLIANCE WOULD LIKE TO REMIND THOSE WITH LUPUS, ESPECIALLY THE NEWLY DIAGNOSED, HOW TO PROTECT THEMSELVES FROM FLARES AS THEY ENJOY THE SUMMER SUN.
Continue reading "PR UV Safety Month" »
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PR Patient Advocates Visit Capitol Hill
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Patient Advocates from the Lupus Alliance of America LI/Q Affiliate participate in National Lupus Awareness activities on Capitol Hill.
Continue reading "PR Patient Advocates Visit Capitol Hill" »
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PR Significant Others Support Group Meetings
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If you love someone with lupus, The Lupus Alliance of America Long Island/Queens Affiliate would like to invite you to join their Significant Others Support Group Meetings.
Continue reading "PR Significant Others Support Group Meetings" »
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