Lupus Alliance Long Island Queens Affiliate http://www.lupusli.org/ We are committed to providing education, support and services to people with lupus, their families and friends, the medical community and the general public. en Copyright 2008 Tue, 24 Jul 2012 23:01:19 -0500 http://www.sixapart.com/movabletype/?v=3.2 http://blogs.law.harvard.edu/tech/rss Thank You We are very fortunate to have many sponors, volunteers and supporters of The Lupus Alliance. We will begin featuring some of those people and organizations here. Please view our past and present "Donors of the Month" by clicking on the tool bar to the left.

]]> http://www.lupusli.org/2012/07/thank_you.php http://www.lupusli.org/2012/07/thank_you.php Thank you Tue, 24 Jul 2012 23:01:19 -0500 Bienvenidos a La Alianza de Lupus de América, afiliación de Long Island/Queens. Estamos comprometidos a proporcionar educación, apoyo y servicios a personas con lupus, a sus familias y amigos, a la comunidad médica y al público en general. Esperamos que encuentre este sitio informativo y provechoso.

El propósito de este sitio es proporcionar información y recursos que ayudarán a aquellos diagnosticados con lupus mejor comprender y manejar esta enfermedad, al igual que ayudar a aquellos que vienen a nosotros para recibir información. Queremos proporcionarle los recursos educativos más actuales e informativos. Creemos que nuestros programas y servicios son una fuente de estímulo y poder. Nuestra meta es mejorar la calidad de vida para aquellos afligidos con lupus a través de educación, servicios, concienciación y trabajo comunitario, y apoyo a la investigación que resultará en mejores tratamientos y, algún día, en una cura.

Estamos en el proceso de traducir las páginas de este sitio y de poder ofrecerles más y más información y recursos en español muy pronto.

]]> http://www.lupusli.org/2012/06/bienvenidos_a_la_alianza_de_lu.php http://www.lupusli.org/2012/06/bienvenidos_a_la_alianza_de_lu.php Información en Español Sun, 24 Jun 2012 05:51:19 -0500 Services Overview Lupus Alliance of Long Island/Queens offers a variety of services for people with lupus, their families and friends and others seeking to learn more about lupus. To find out more about some of these particular services please click the links to the left. These services include:

]]> http://www.lupusli.org/2010/07/services_overview_1.php http://www.lupusli.org/2010/07/services_overview_1.php Thu, 22 Jul 2010 16:36:11 -0500 What is Lupus? Lupus is a chronic, autoimmune disease, which causes inflammation of various parts of the body, especially the skin, joints, blood or kidneys. The immune system normally protects the body against viruses, bacteria and other foreign invaders. Lupus affects the immune system so that it is unable to distinguish the body’s own cells and tissues from foreign matter. The immune system may attack different parts of the body causing inflammation, injury and/or pain.

]]> http://www.lupusli.org/2010/06/what_is_lupus.php http://www.lupusli.org/2010/06/what_is_lupus.php Lupus Information Thu, 24 Jun 2010 05:35:42 -0500 Contact Information Lupus Alliance of America, Long Island/Queens Affiliate.
2255 Centre Avenue
Bellmore, New York 11710

Phone: 516-783-3370 or1-800-850-9000

Fax: 516-826-2058
Email: info@lupusli.org, info@lupusliqueens.org


A copy of our annual report may be obtained, upon request, from the Lupus Alliance or from the Office of the Attorney General, Charities Bureau, 120 Broadway, New York New York 10027. For a copy of our 990 and financial information go to www.guidestar.org

]]> http://www.lupusli.org/2010/06/contact_information.php http://www.lupusli.org/2010/06/contact_information.php About Us Thu, 24 Jun 2010 05:27:32 -0500 Office Hours Monday -Thursday 9:30 AM - 5:00 PM

Friday 9:30AM - 4:00 PM

]]> http://www.lupusli.org/2010/06/office_hours.php http://www.lupusli.org/2010/06/office_hours.php About Us Mon, 21 Jun 2010 05:28:40 -0500 Rituxan Results, Although Disappointing, Can Help Create Better Drugs and Build Better Trials for Lupus Learnings from landmark study across multiple organ systems will inform progress in this complex autoimmune disease

]]> http://www.lupusli.org/2008/05/rituxan_results_although_disap.php http://www.lupusli.org/2008/05/rituxan_results_although_disap.php Lupus Research Information Thu, 01 May 2008 10:24:05 -0500 GENENTECH AND BIOGEN IDEC ANNOUNCE TOP-LINE RESULTS FROM PHASE II/III CLINICAL STUDY OF RITUXAN IN SYSTEMIC LUPUS ERYTHEMATOSUS SOUTH SAN FRANCISCO, Calif. and CAMBRIDGE, Mass. – April 29, 2008 – Genentech, Inc. (NYSE: DNA) and Biogen Idec, Inc. (Nasdaq: BIIB) announced today that a Phase II/III study of Rituxan® (rituximab) for systemic lupus erythematosus (SLE, commonly called lupus) did not meet its primary endpoint defined as the proportion of Rituxan treated patients who achieved a major clinical response (MCR) or partial clinical response (PCR) measured by BILAG, a lupus activity response index, compared to placebo at 52 weeks. The study also did not meet any of the six secondary endpoints. Genentech and Biogen Idec will continue to analyze the study results and will submit the data for presentation at an upcoming medical meeting.

]]> http://www.lupusli.org/2008/05/genentech_and_biogen_idec_anno.php http://www.lupusli.org/2008/05/genentech_and_biogen_idec_anno.php Lupus Research Information Thu, 01 May 2008 10:21:19 -0500 The Lupus Alliance of America LI/Q Affiliate sends patient advocates to Washington D.C. to urge Congress to increase the NIH budget, as well as to continue to support lupus research and education Washington D.C. – On March 5th, Board Members, staff and patient advocates from The Lupus Alliance of America LI/Q Affiliate joined other members of the LRI National Coalition from all over the country for Lupus Advocacy Day in Washington D.C. Among these advocates were Long Island residents, Nancy Beder and JoAnn Quinn of Bellmore, Violet Regan of Westbury, Mary Geraghty of Northport, Bonnie and David Mamiye of Great Neck, J.C., Carole-Anne and Luke Bonner of West Babylon, and John Vander-Putten, Frank, Christine and Olivia Donato all of Massapequa Park.

]]> http://www.lupusli.org/2008/04/the_lupus_alliance_of_america_2.php http://www.lupusli.org/2008/04/the_lupus_alliance_of_america_2.php Press Releases Thu, 10 Apr 2008 16:16:09 -0500 The Lupus Alliance of America LI/Q Affiliate, Long Island’s only Lupus agency reaches out to those that need their help. Since 1955, The Lupus Alliance of America LI/Q Affiliate has been helping those with lupus live better lives while also funding and searching for a cure. As the only Lupus agency to ever be on and exclusively for Long Island, the Lupus Alliance provides several patient orientated programs to help ease the pain of living with this chronic life threatening illness.

]]> http://www.lupusli.org/2008/04/the_lupus_alliance_of_america_1.php http://www.lupusli.org/2008/04/the_lupus_alliance_of_america_1.php Press Releases Thu, 10 Apr 2008 16:15:27 -0500 Profound Immune System Discovery Opens Door to Halting Destruction of Lupus (New York, NY) December, 2007 – A researcher funded by the Lupus Research Institute (LRI) has discovered an entirely new and powerful molecular switch that controls the inflammatory response of the immune system. The major finding, reported in the December 14th issue of the journal Cell, means that new methods can now be pursued to shut down uncontrolled inflammation, restore immune system regulation, and treat chronic autoimmune disorders such as lupus.

]]> http://www.lupusli.org/2008/04/profound_immune_system_discove_1.php http://www.lupusli.org/2008/04/profound_immune_system_discove_1.php Lupus Research Information Thu, 10 Apr 2008 16:12:40 -0500 Lupus Research Institute Launches Novel Studies in Human Lupus The Lupus Research Institute (LRI) invites scientists with innovative ideas about what goes wrong in human lupus and ways to fix it to apply for grant funding to mount novel investigations in Human Lupus Biology.

]]> http://www.lupusli.org/2008/04/lupus_research_institute_launc.php http://www.lupusli.org/2008/04/lupus_research_institute_launc.php Lupus Research Information Thu, 10 Apr 2008 16:10:50 -0500 Washington D.C. Lupus Advocacy Day The week of March 3rd, The Lupus Alliance of America LI/Q Affiliate joined other members of the LRI National Coalition from California to New York for Lupus Advocacy Day in Washington D.C.

]]> http://www.lupusli.org/2008/03/washington_dc_lupus_advocacy_d_1.php http://www.lupusli.org/2008/03/washington_dc_lupus_advocacy_d_1.php Lupus Awareness and Advocacy Tue, 18 Mar 2008 16:38:59 -0500 Skate with Greg-T from Z-100 at USA Roller Skating Rink’s Skate for Lupus! Spend a fun afternoon skating with Greg-T from Z-100 radio station while supporting a good cause. That is what the Lupus Alliance of America LI/Q Affiliate is hoping kids and adults from Long Island will do on Saturday, June 28th, from 3:30 to 6:00pm, at USA Roller Skating Rink in Seaford.

Besides being able to hang out with Greg, you can win a Birthday Party at USA Roller Skating Rink, enjoy the Live DJ, participate in the trivia games, play video games or just come down, enjoy the atmosphere and show your support for your friends, neighbors, and colleagues who suffer from lupus.

]]> http://www.lupusli.org/2008/03/skate_with_gregt_from_z100_at.php http://www.lupusli.org/2008/03/skate_with_gregt_from_z100_at.php Upcoming Fundraising Events Tue, 18 Mar 2008 16:15:58 -0500 Cell Signaling Glitch Contributes To Lupus Progression Immune cells that would normally die in healthy people accumulate in bodies of patients who have lupus and contribute to the disease, according to new Saint Louis University research published in the Feb. 15 issue of Immunity.

]]> http://www.lupusli.org/2008/02/cell_signaling_glitch_contribu.php http://www.lupusli.org/2008/02/cell_signaling_glitch_contribu.php Lupus Research Information Mon, 25 Feb 2008 11:16:54 -0500