Lupus Alliance Long Island Queens Affiliate

Thank You

Tue, 24 Jul 2012 23:01:19 -0500

We are very fortunate to have many sponors, volunteers and supporters of The Lupus Alliance. We will begin featuring some of those people and organizations here. Please view our past and present "Donors of the Month" by clicking on the tool bar to the left.

Bienvenidos a La Alianza de Lupus de América, afiliación de Long Island/Queens.

Sun, 24 Jun 2012 05:51:19 -0500

Estamos comprometidos a proporcionar educación, apoyo y servicios a personas con lupus, a sus familias y amigos, a la comunidad médica y al público en general. Esperamos que encuentre este sitio informativo y provechoso.

El propósito de este sitio es proporcionar información y recursos que ayudarán a aquellos diagnosticados con lupus mejor comprender y manejar esta enfermedad, al igual que ayudar a aquellos que vienen a nosotros para recibir información. Queremos proporcionarle los recursos educativos más actuales e informativos. Creemos que nuestros programas y servicios son una fuente de estímulo y poder. Nuestra meta es mejorar la calidad de vida para aquellos afligidos con lupus a través de educación, servicios, concienciación y trabajo comunitario, y apoyo a la investigación que resultará en mejores tratamientos y, algún día, en una cura.

Estamos en el proceso de traducir las páginas de este sitio y de poder ofrecerles más y más información y recursos en español muy pronto.

Services Overview

Thu, 22 Jul 2010 16:36:11 -0500

Lupus Alliance of Long Island/Queens offers a variety of services for people with lupus, their families and friends and others seeking to learn more about lupus. To find out more about some of these particular services please click the links to the left. These services include:

What is Lupus?

Thu, 24 Jun 2010 05:35:42 -0500

Lupus is a chronic, autoimmune disease, which causes inflammation of various parts of the body, especially the skin, joints, blood or kidneys. The immune system normally protects the body against viruses, bacteria and other foreign invaders. Lupus affects the immune system so that it is unable to distinguish the body’s own cells and tissues from foreign matter. The immune system may attack different parts of the body causing inflammation, injury and/or pain.

Contact Information

Thu, 24 Jun 2010 05:27:32 -0500

Lupus Alliance of America, Long Island/Queens Affiliate.
2255 Centre Avenue
Bellmore, New York 11710

Phone: 516-783-3370 or1-800-850-9000

Fax: 516-826-2058
Email: info@lupusli.org, info@lupusliqueens.org

A copy of our annual report may be obtained, upon request, from the Lupus Alliance or from the Office of the Attorney General, Charities Bureau, 120 Broadway, New York New York 10027. For a copy of our 990 and financial information go to www.guidestar.org

Office Hours

Mon, 21 Jun 2010 05:28:40 -0500

Monday -Thursday 9:30 AM - 5:00 PM

Friday 9:30AM - 4:00 PM

The Lupus Drug Gold Mine

Mon, 01 Feb 2010 10:42:02 -0500

Lupus has puzzled doctors since it was identified in the 1800s. For unknown reasons, the body makes antibodies against itself. Symptoms--ranging from fever to rashes to joint pain to kidney damage--come and go unpredictably. The average lupus patient waits four years and sees three doctors before getting an accurate diagnosis. There have been no new drugs in 50 years.

New Therapeutic Approach Identified For Kidney Disease Associated With Lupus

Mon, 01 Feb 2010 10:31:41 -0500

Investigators have identified a new disease mechanism and therapeutic approach for a type of advanced kidney disease that is a common cause of complications in patients with lupus.

Benlysta™ trial results in an historic research breakthrough and victory for people with lupus

Mon, 02 Nov 2009 13:12:47 -0500

Second successful phase III trial points to the first new lupus treatment in over 50 years. As a member of the Lupus National Coalition, we are thrilled to make this announcement and to be a part of this history making drug!

More Good News for Lupus at the American College of Rheumatology Meeting

Thu, 22 Oct 2009 11:13:20 -0500

Human Genome Sciences and GlaxoSmithKline Report Details of First Positive Phase 3 Clinical Trial for Lupus

Cellular Mechanism That Causes Lupuslike Symptoms In Mice Identified By Stanford Study

Thu, 22 Oct 2009 11:09:07 -0500

Macrophages, the scavenger cells of the body's immune system, are responsible for disposing of dying cells. Stanford University School of Medicine researchers have identified one pathway in this important process in mice that, if disrupted, causes a lupuslike autoimmune disease.

Lupus Patients Perceive Benefit From Cardiovascular Disease Prevention Counseling Program

Thu, 22 Oct 2009 11:06:52 -0500

According to a new study by Hospital for Special Surgery investigators presented at the American College of Rheumatology meeting on October 21 in Philadelphia, most lupus patients are not aware that their condition puts them at a higher risk for cardiovascular disease and a counseling program is a valuable way to promote education and lifestyle change.

Antibody Puts Young Women at Risk of Stroke, MI

Tue, 06 Oct 2009 13:42:27 -0500

Women with the lupus anticoagulant -- an antiphospholipid antibody -- had five times the risk of heart attack of other women, and a 40-fold greater risk of stroke, researchers said.

Urinary TWEAK as a biomarker of lupus nephritis: a multicenter cohort study

Tue, 06 Oct 2009 13:40:35 -0500

IntroductionTumor necrosis factor (TNF)-like weak inducer of apoptosis (TWEAK) has been implicated as a mediator of chronic inflammatory processes via prolonged activation of the NF-kB pathway in several tissues, including the kidney. Evidence for the importance of TWEAK in the pathogenesis of lupus nephritis (LN) has been recently introduced.

Lucy of 'Lucy in the Sky with Diamonds' fame dies

Tue, 29 Sep 2009 11:00:36 -0500

Lucy Vodden, who provided the inspiration for the Beatles' classic song "Lucy in the Sky with Diamonds," has died after a long battle with lupus. She was 46.