Lupus Alliance Long Island Queens Affiliate http://www.lupusli.org/ Our mission is to support and educate those affected by lupus and find a cure. en Copyright 2009 Tue, 24 Jul 2012 23:01:19 -0500 http://www.sixapart.com/movabletype/?v=3.2 http://blogs.law.harvard.edu/tech/rss Thank You We are very fortunate to have many sponors, volunteers and supporters of The Lupus Alliance. We will begin featuring some of those people and organizations here. Please view our past and present "Donors of the Month" by clicking on the tool bar to the left.

]]> http://www.lupusli.org/2012/07/thank_you.php http://www.lupusli.org/2012/07/thank_you.php Thank you Tue, 24 Jul 2012 23:01:19 -0500 Bienvenidos a La Alianza de Lupus de América, afiliación de Long Island/Queens. Estamos comprometidos a proporcionar educación, apoyo y servicios a personas con lupus, a sus familias y amigos, a la comunidad médica y al público en general. Esperamos que encuentre este sitio informativo y provechoso.

El propósito de este sitio es proporcionar información y recursos que ayudarán a aquellos diagnosticados con lupus mejor comprender y manejar esta enfermedad, al igual que ayudar a aquellos que vienen a nosotros para recibir información. Queremos proporcionarle los recursos educativos más actuales e informativos. Creemos que nuestros programas y servicios son una fuente de estímulo y poder. Nuestra meta es mejorar la calidad de vida para aquellos afligidos con lupus a través de educación, servicios, concienciación y trabajo comunitario, y apoyo a la investigación que resultará en mejores tratamientos y, algún día, en una cura.

Estamos en el proceso de traducir las páginas de este sitio y de poder ofrecerles más y más información y recursos en español muy pronto.

]]> http://www.lupusli.org/2012/06/bienvenidos_a_la_alianza_de_lu.php http://www.lupusli.org/2012/06/bienvenidos_a_la_alianza_de_lu.php Información en Español Sun, 24 Jun 2012 05:51:19 -0500 Services Overview Lupus Alliance of Long Island/Queens offers a variety of services for people with lupus, their families and friends and others seeking to learn more about lupus. To find out more about some of these particular services please click the links to the left. These services include:

]]> http://www.lupusli.org/2010/07/services_overview_1.php http://www.lupusli.org/2010/07/services_overview_1.php Thu, 22 Jul 2010 16:36:11 -0500 What is Lupus? Lupus is a chronic, autoimmune disease, which causes inflammation of various parts of the body, especially the skin, joints, blood or kidneys. The immune system normally protects the body against viruses, bacteria and other foreign invaders. Lupus affects the immune system so that it is unable to distinguish the body’s own cells and tissues from foreign matter. The immune system may attack different parts of the body causing inflammation, injury and/or pain.

]]> http://www.lupusli.org/2010/06/what_is_lupus.php http://www.lupusli.org/2010/06/what_is_lupus.php Lupus Information Thu, 24 Jun 2010 05:35:42 -0500 Contact Information Lupus Alliance of America, Long Island/Queens Affiliate.
2255 Centre Avenue
Bellmore, New York 11710

Phone: 516-783-3370 or1-800-850-9000

Fax: 516-826-2058
Email: info@lupusli.org, info@lupusliqueens.org


A copy of our annual report may be obtained, upon request, from the Lupus Alliance or from the Office of the Attorney General, Charities Bureau, 120 Broadway, New York New York 10027. For a copy of our 990 and financial information go to www.guidestar.org

]]> http://www.lupusli.org/2010/06/contact_information.php http://www.lupusli.org/2010/06/contact_information.php About Us Thu, 24 Jun 2010 05:27:32 -0500 Office Hours Monday -Thursday 9:30 AM - 5:00 PM

Friday 9:30AM - 4:00 PM

]]> http://www.lupusli.org/2010/06/office_hours.php http://www.lupusli.org/2010/06/office_hours.php About Us Mon, 21 Jun 2010 05:28:40 -0500 HGS Hoping to Survive Final Test of Lupus Drug In the high-stakes, high-risk, high-failure business of developing drugs, there are two events that test an executive's intestinal fortitude.

]]> http://www.lupusli.org/2009/07/hgs_hoping_to_survive_final_te.php http://www.lupusli.org/2009/07/hgs_hoping_to_survive_final_te.php Lupus Research Information Wed, 01 Jul 2009 13:06:56 -0500 Scripps research scientists find key culprits in lupus LA JOLLA, CA, June 29, 2009 The more than 1.5 million Americans with systemic lupus erythematosus (or lupus) suffer from a variety of symptoms that flare and subside, often including painful or swollen joints, extreme fatigue, skin rashes, fever, and kidney problems. Researchers at The Scripps Research Institute have now identified the main trigger for the development of this disease.

]]> http://www.lupusli.org/2009/07/scripps_research_scientists_fi.php http://www.lupusli.org/2009/07/scripps_research_scientists_fi.php Lupus Research Information Wed, 01 Jul 2009 13:04:51 -0500 Harvard University Announcement - Tuition Help Harvard University announced over the weekend that from now on undergraduate students from low-income families will pay no tuition.

]]> http://www.lupusli.org/2009/06/harvard_university_announcemen.php http://www.lupusli.org/2009/06/harvard_university_announcemen.php Programs for Kids, Teens and Parents Tue, 16 Jun 2009 12:16:47 -0500 New Lupus Drug Showed Positive Results In Trial Said Manufacturer A phase 2 trial of the drug belimumab in patients with active systemic lupus erythematosus (SLE) showed positive results, according to the drug company.

]]> http://www.lupusli.org/2009/06/new_lupus_drug_showed_positive.php http://www.lupusli.org/2009/06/new_lupus_drug_showed_positive.php Lupus Research Information Tue, 16 Jun 2009 11:21:51 -0500 Development Of DNA Drugs Gives Hope To Lupus Patients A generation of DNA-like compounds, class R inhibitory oligonucleotides (INH-ODNs), have been shown to effectively inhibit cells responsible for the chronic autoimmune condition lupus.

]]> http://www.lupusli.org/2009/06/development_of_dna_drugs_gives.php http://www.lupusli.org/2009/06/development_of_dna_drugs_gives.php Lupus Research Information Tue, 02 Jun 2009 09:41:20 -0500 Lupus Alliance Exclusive "The Many faces of Lupus" PSA The Lupus Alliance of America LIQ Affiliate exclusive " The Many Faces of Lupus" PSA.

]]> http://www.lupusli.org/2009/05/lupus_alliance_exclusive_the_m.php http://www.lupusli.org/2009/05/lupus_alliance_exclusive_the_m.php Media Center Wed, 20 May 2009 12:02:45 -0500 Lupus Awareness Month Interview with Senator Kemp Hannon On May 4th, our staff, members of our Board of Directors and several member volunteers traveled to Albany NY to be a part of Lupus Awareness Day.

]]> http://www.lupusli.org/2009/05/lupus_awareness_month_intervie.php http://www.lupusli.org/2009/05/lupus_awareness_month_intervie.php Media Center Wed, 20 May 2009 11:48:24 -0500 The Lupus Alliance of America LIQ Affiliate has several Awareness and Education Forums set for Lupus Awareness Month in May. New York State Senator Shirley L. Huntley, with Senate Majority leader Malcolm A. Smith along with The Jamaica Neighborhood Center`s Southeast Queens Lupus Connection, will be presenting a Lupus Awareness and Education Forum on Thursday, May 8th from 10:00am-1:00pm at the Jamaica Neighborhood Center at 161-06 89th Avenue in Jamaica N.Y.

]]> http://www.lupusli.org/2009/05/the_lupus_alliance_of_america_5.php http://www.lupusli.org/2009/05/the_lupus_alliance_of_america_5.php Media Center Thu, 14 May 2009 15:03:07 -0500 The Lupus Alliance of America LI/Q Affiliate will use the power of Social Media to help recognize Lupus Awareness month in May. In the 1950`s televisions had tubes inside them, antennas on top of them, and received 13 channels. Today televisions have flat screens, are digital and receive more than 400 channels; big difference. In the 1950`s cars were metal, had carburetors and manual steering. Today, cars are fiberglass, have fuel injection and are controlled by computers; really big difference. In the 1950`s lupus was treated with a steroid medication that caused bone loss, stunted growth, delayed puberty, and unsightly stretch marks, named Prednisone. Today lupus is treated with a steroid medication that causes bone loss, stunted growth, delayed puberty and unsightly stretch marks, named Prednisone….see the difference? Neither do we.

]]> http://www.lupusli.org/2009/05/the_lupus_alliance_of_america_4.php http://www.lupusli.org/2009/05/the_lupus_alliance_of_america_4.php Media Center Thu, 14 May 2009 14:53:23 -0500