2255 Centre Ave. Bellmore, NY 11710  Phone: 1-800-850-9000      www.lupusli.org		Sunday, October 18, 2009,  Eisenhower Park, Field #6 Registration begins at 8:30am, Walk begins at 10am

Click HERE to return to the 2009 Walk-Along for Lupus Menu

About the Lupus Alliance of LI/Queens

The Lupus Alliance of America LI/Q Affiliate has been helping those with lupus since 1955 in Nassau, Suffolk, and Queens with our direct patient services and all over the world with our donations to the Lupus Research Institute to further the novel research we hope one day will find the cause and cure of lupus. We are a volunteer driven organization devoted to helping and supporting people with lupus and their families.

Our mission is to provide support and education to better the quality of life for people with lupus and their families, to promote awareness and understanding of lupus to others and to support research that will improve the diagnosis and treatment of lupus and ultimately discover its cause and cure.

The Lupus Alliance of Long Island/Queens is a 501(C) (3) not-for-profit organization incorporated under the State of New York. A copy of our latest Annual Report may be obtained upon request, from the Lupus Alliance or from the Office of the Attorney General, Charities Bureau, 120 Broadway, NY, NY 10271.

We are the only Lupus walk on Long Island that supports research as well as families with lupus! The Annual Lupus Walk is our biggest fundraiser of the year and provides the funds for almost all of our programs and services.

Our programs include:
Kids program
Financial Assistance
Professionally led Support Groups
 Education Days
Seminars and Symposiums
Doctor Referrals
Grants and Scholarships
 Lending Library
Resource Library
Speakers Bureau
 Advocacy
Awareness Programs
Quarterly Newsletter
Informative Brochures
Community Outreach

The Walk-Along for Lupus was started 15 years ago by the Lupus Alliance of LI/Q and soon became their biggest fundraiser of the year! Every year the money raised at our Walk assists us in continuing our programs, as well as support new research. Thanks to your dollars it has been a busy year full of new programs, reaching new heights of advocacy and awareness and making new strides in lupus research, and yet throughout it all we have managed to keep our operating costs under 12%!

Through the Quality of Life Program we have helped those in need with their household costs and medical expenses; The Let Kids Be Kids Program entertained our children with new trips, assisted parents with school plans and started two new programs; one for young adults with lupus in college, and a college scholarship program for anyone in a lupus family. Our Education Days are booked with newcomers to lupus, and our support groups and LupusLine service continues to help those who need someone to talk to.

 Our Community Outreach program has been touring local libraries and lectured at Native American Reservations. We continue to support the Lupus Research Institute (LRI), the first to focus on novel research in both treatment and cure, which has received over $390,000 from us in the last three years, making us their largest contributor from the National Coalition. We spent time in Washington D.C. learning about the latest in Clinical Trials for lupus and speaking with our Representatives about several issues before the House and Senate regarding lupus.

We are proud of the work we have done this year, and thankful for your walk donations that helped us achieve these goals. With your continued help, we look forward to another great year of accomplishments.

The time to fight lupus is now! The lupus community is seeing unprecedented interest from biotechnology and pharmaceutical companies that translates into dozens of companies interested in lupus and clinical trials. The top doctors studying lupus today predict that the next ten years should show big breakthroughs for lupus with new and better medications, more definitive diagnostic tools and more expanded research into the cause of lupus.
Lupus is finally starting to get the attention those with the disease deserve!

To find out about membership, volunteering, office hours or more please click here.