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Services Overview |
Lupus Alliance of Long Island/Queens offers a variety of services for people with lupus, their families and friends and others seeking to learn more about lupus. To find out more about some of these particular services please click the links to the left. These services include:
Information Packets -Packets containing information about lupus and the services of our Alliance are sent to all that request them.
Support Groups - Our support groups are held throughout Nassau, Suffolk and Queens. A professional counselor who is also a person with lupus facilitates these groups. For a list of support group locations and times.
LupusLine Long Island- Queens - a free telephone peer counseling service for people with lupus and their families.
New Patient Orientation- Free classes for newly diagnosed people with lupus, their families and friends are held every other month at the chapter office. Please check the calendar for dates.
Education Day Programs - An all day education program on lupus that helps participants learn the medical facts about Lupus and how to live with this chronic illness. The group is limited in size so that experiences can be shared.
Doctor Referral List - Our Alliance provides a list of specialists in Rheumatology and dermatology who have indicated an interest in treating individuals with lupus. This list contains physicians in Nassau, Suffolk, Queens, Brooklyn and Manhattan. Call our office and we will help you locate a doctor in your area.
If you would like to research a rheumatologist in your area go to:
http://www.rheumatology.org/directory
If you would like to research a dermatologist go to: http://www.aad.org
Newsletters -The Lupus News Link is mailed quarterly to people with lupus, their families, health care professionals, and clinics. The newsletter gives current information about lupus, research updates, volunteer opportunities, chapter events and more.
Seminars - An annual seminar, as well as periodic workshops, is specifically designed to meet the needs of the lupus community. Presentations are by both medical and business professionals. Topics are based on requests from members and participants. Dates, topics and locations appear in our newsletter and in our calendar.
Resource Library - Books on the various aspects of lupus are available for purchase. Members are also able to borrow books and videos from the Alliances lending library.
Financial Assistance Program - The Quality of Life program was developed in 2000 to help individuals with lupus meet needs that are not covered by other resources. Inquiries regarding the eligibility and availability of this program may contact our office at 1-800-850-9000. This program is limited in scope and as a source of last resort.
Speakers’ Bureau - Trained speakers are available to address professionals, schools and personal groups about lupus and the Lupus Alliance, Long Island/Queens Affiliate. No group is too large or too small. Call our office to schedule a speaker.
Kids Programs - Our “Let Kids be Kids” program is available to children 7-17 who have lupus or a family member with lupus. Day trips to fun places are planned, transportation included. Scholarships are also available to children afflicted with lupus who have special needs that cannot be covered by other means.
Spanish speaking staff
Wheelchairs Available. We now have 4 wheelchairs that have been donated to this office. If anyone has a need for one, they will be available for borrowing. Please contact the office to request one.







