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The Lupus Alliance of America LI/Q Affiliate will use the power of Social Media to help recognize Lupus Awareness month in May. |
In the 1950`s televisions had tubes inside them, antennas on top of them, and received 13 channels. Today televisions have flat screens, are digital and receive more than 400 channels; big difference. In the 1950`s cars were metal, had carburetors and manual steering. Today, cars are fiberglass, have fuel injection and are controlled by computers; really big difference. In the 1950`s lupus was treated with a steroid medication that caused bone loss, stunted growth, delayed puberty, and unsightly stretch marks, named Prednisone. Today lupus is treated with a steroid medication that causes bone loss, stunted growth, delayed puberty and unsightly stretch marks, named Prednisone….see the difference? Neither do we.
The Lupus Alliance of America LI/Q Affiliate will be running a new awareness and fundraising campaign during Lupus Awareness month in May. The 50 for 50 Campaign is designed to spread awareness that there has not been a new medication approved for the treatment of lupus in 50 years. No other major disease that affects as many people as lupus (over 2 million Americans) has had to wait that long for a new, better, and less toxic medication.
JoAnn Quinn, Executive Director of the Lupus Alliance of LIQ said, “It`s time we join together and let the world know, 50 years is long enough to wait. We hope we can spread that message through social media websites. People on sites like facebook and twitter are very philanthropic and can really help us let the world know what people with lupus face every day. They really do care.”
The 50 for 50 campaign begins on May 1st and ends May 31st and is multifaceted. You can visit the 50 for 50 fundraising webpage and donate any denomination of 50, for instance $1.50, $5.50, or $50.00. You can also sign the 50 years is too long to wait online petition asking the government to fund more research into new medications for lupus. If you have a facebook page, or if you twitter, there are also several contests in place where you can win a $200 Visa gift card by recruiting the most members to the cause, re-tweeting the most information on the cause, and donating at least $5.50 to be entered into a raffle to win. All contest rules are listed on the 50 for 50 website.
For more information please call the Lupus Alliance of America LI/Q Affiliate at 516-783-3370 or 1-800-850-9000 or email the office at info@lupusliqueens.org. The Lupus Alliance has been helping those with lupus for over 50 years with patient orientated programs designed to improve the quality of life for those living with lupus, as well as funding novel research into the cause and cure of the disease. The Alliance hopes that this online campaign will help them spread unprecedented awareness about lupus as well as raise money which will go directly to help those living with the disease.
