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Links for Chronically Ill Children and their parents

Believe In Tomorrow
Wish company offering wishes to sick children. However, this one offers a weeks free vacation at one of their resorts in Delaware or Maryland. They also put you on a list to experience fun things that are coming to your neighborhood, such as car races; blimp rides, meeting a celebrity etc.
www.believeintomorrow.org

Camp Sunshine
A camp in Maine, which is for families of children with illnesses like lupus. Lupus week is in August. The whole immediate family gets to attend, and activities include; swimming, boating, wall climbing, art and crafts, masquerade parties, talent show, support groups, archery and more.
www.campsunshine.org

Chemo Angels
If you are on chemotherapy and are 18 years old or younger, you can apply for a chemo angel. This angel will send you gifts and games, as well as cards and emails. They will also send things on holidays and birthdays to any siblings who are under 18. www.chemoangels.com

Children’s Wish Foundation
Offers wishes to children who suffer from diseases like lupus.
www.childrenswish.com

Emily’s Foundation
Offers free air transport to critically ill children and their families, when they need to go to an out of state hospital for a procedure free of charge. www.emilysfoundation.com

Give Kids the World
This is a resort in Kissimmee Florida that caters to children and teens whose wish it is to visit Disney world and other Orlando theme parks. They offer everything free, from food, lodging and tickets to the parks.
www.gktw.org

Kids Wish Network
Another wish program for kids that grants specific wishes to children who suffer from disease like lupus.
www.kidswishnetwork.com

Locks of Love
This company donates real hair wigs to children who have lost their hair from Chemotherapy.
www.locksoflove.com

Band-Aids and Blackboards
This site offers stories from real kids who are suffering from chronic illnesses like lupus. http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/sitemap.html

Make-A-Wish
Make a Wish will accept and grant wishes from children with lupus. You can visit their site and find out how to apply right online. www.makeawish.org

Songs of Love
This site will design a song for a sick child/teen especially for them.
www.songsoflove.org

Special Wish Foundation
Another wish foundation. www.spwish.org

Sunshine Foundation
Another wish granting company for kids and teens with disease like lupus.
www.sunshinefoundation.com

The Marty Lyons Foundation
Another wish company, like make a wish, that grants specific wishes to kids with disease like lupus.
www.martylyonsfoundation.org

Brave Kids
This site gives you great info on kid’s camps, scholarships and more.
www.bravekids.org

Starbright World
This company started by Steven Spielberg, is available to kids and teens living with a chronic illness. It is a safe and secure online community where kids living with disease like lupus can connect with each other. They also help get you free access to AOL, and there is a section for parents to check out as well.
www.starbright.org

Friends of Karen
Dedicated to providing emotional, financial and advocacy support to children with life-threatening illnesses and their families. www.friendsofkaren.org

Make a Child Smile.org
This is a great site where you can submit your child and receive loads of gifts and cards from strangers all over the world. Siblings will receive gifts as well. It is a great way to cheer up a child who is home sick, or in the hospital. www.Makeachildsmile.org

Head Covers
This company offers great head cover products for people and kids who have lost their hair from chemotherapy. www.headcovers.com

Rit Sunguard
This company offers a great laundry additive that can help your clothes become sun protective. It is worth the look, and reasonably priced. www.ritsunguard.com

504 School Forms
This link brings you to a form you can print out and fill out. It is a great guide in helping parents make sure their disabled children get the help and rights that they deserve under the law.
www.kidlupus.org/pdf/SAP.pdf

Sun Protective Clothing
This is a site for sun protective clothing, you can order online or ask for a catalog.
www.sunprotected.com

Sun Protective Clothing
This is another site offering sun protective clothing.
www.sunprecautions.com

The Rocky Mountain Sunscreen Company
This company offers some great sunscreen products for people who have to wear it daily, like lupus sufferers. Their products are PABA free, hypo allergenic, and Fragrance free.
www.rmsunscreen.com

Tom’s of Maine
This company offers natural and chemical free items ranging from hair care, face creams, mouthwash, soap, deodorants and toothpaste. www.tomsofmaine.com

Aubrey Organics
This company offers natural hair and face care products to people who have sensitive skin and for those who suffer from chemical allergies. www.aubreyorganics.com

Aveda
This is a company offering chemical free and allergen free make-up an hair products.
www.aveda.com

SunGrubbies
This is another company with sun protective clothing, aimed more for kids and teens. www.sungrubbies.com

National Association of Hospital Hospitality Houses, Inc
Lists all of the Ronald McDonald houses, as well as other hospitality houses around the country for families to stay when their child is in the hospital. www.nahhh.org

The Sibling Support Project
A website with resources for siblings of a child with lupus and other chronic illnesses.
www.thearc.org/siblingsupport/sibshops-directory

Free Computers for People with Disabilities:
The Jim Mullen Foundation provides free computers for people with disabilities. The organization specializes in providing computers for anybody especially for those individuals who think that they are unable to use one.
http://www.jimmullen.com/ZoomSeq.asp?id=7948

 
 
 
 

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Disclaimer: The owners and authors of this site do not promote, support, or recommend any particular website, product, treatment or medication for any medical condition. No treatment should be undertaken without the supervision of a physician.
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